Polycythemia Vera Pre-diagnosis Patient Report

rosacea from polycythemia vera

Publisher’s Intro by David Wallace As a certified, red-blooded JAK2 positive Polycythemia Vera (PV) patient, I have always been fascinated by the events leading up to a PV diagnosis. By sharing our stories, perhaps we offer “a dose of comfort” to the new or recently diagnosed.  When they read of struggles that other patient’s experience, […]

PV Warriors!

by Gwen Lord For the last 20 years I have lived in a place named Colchester which is known as Britain’s oldest recorded town. Original roman walls still stand and mark the boundaries of a Roman Castle that is now used as a museum and contains many artefacts found in the Colchester area.  Just a […]

Jason Rappaport’s Polycythemia Vera Story

jason rappaport polycythemia vera story

Publisher’s Introduction by David Wallace After experiencing my own “unpleasant….putting it kindly” tango with Poly, I transitioned through various stages of grief and have seen other patients travel a similar path over the last few years. Rarely have I seen a newly diagnosed patient jump in full bore with both feet, wet behind the ears […]

Jane Murray’s MPN Story

Jane Murray MPN Story

A Moving Video Account of Jane’s Pre-diagnosis MPN Medical Mishaps After listening to Jane’s video presentation, I was deeply moved by her story and asked if I could post it, along with her comments from an online forum.  Thankfully, she accepted the post invite graciously and without hesitation.  She presented at the MPN Awareness day on […]

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