MPN Specialist Explains PTG-300 and Clinical Trial for PV Patients

by David Wallace Hepcidin Mimetic PTG-300 Promising Treatment for PV How does PTG-300 work to reduce or eliminate the need for phlebotomy in PV?  How does iron deficiency play a role in polycythemia vera?  What are the goals of this treatment?  Leading MPN expert, Dr. Srdan Verstovsek, from MD Anderson Cancer Center, interviews with David […]

Suffering from Signs and Symptoms of Polycythemia Vera?

Thrilled for Polycythemia Vera (PV) Diagnosis! Publisher’s Note (David Wallace): It’s rare that I will accept an anonymous patient story, just one other in 7 years.  Starting back in October 2019, a gentleman who found PV Reporter at the top of a google search, reached out offering to share a “summary” of his story.  We […]

PV For Newbies – A Patient’s Perspective

by Dave Stewart YOU’VE JUST BEEN DIAGNOSED WITH PV… …and now, most likely, you’re looking online for info…anything…to tell you what to expect, what’s next, how long you’re going to live… First things first – Don’t panic.  Easier said than done, but learning how to control your stress and keep it at a healthy level […]

Polycythemia Vera Pre-diagnosis Patient Report

Publisher’s Intro by David Wallace As a certified, red-blooded JAK2 positive Polycythemia Vera (PV) patient, I have always been fascinated by the events leading up to a PV diagnosis. By sharing our stories, perhaps we offer “a dose of comfort” to the new or recently diagnosed.  When they read of struggles that other patient’s experience, […]

The Marijuana Papers

by David Wallace So I wrote this article originally as a contribution to the MPNforum in 2011 under a pen name and now feel it is time to come forward and stake claim, as this is still a very timely discussion.  It was one of my favorite writing projects and my views remain the same, […]

Blood Centers That Polycythemia Vera Patients Can Use

Where to go for Therapeutic Phlebotomy As a Polycythemia Vera patient, you can not give blood to the Red Cross.  You can go to blood centers where they will accept blood from a PV patient for what is referred to as “therapeutic phlebotomy”.  You will need to check with the respective blood center in your […]

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