Cancer Survivor helping others – Newspaper article on David Wallace

PV Reporter, David Wallace, MPN Awareness, patient advocate

PV Reporter gets Local News Coverage for his work on Patient Advocacy and MPN Awareness by Lacey Hampton David Wallace’s experience after being diagnosed with a type of blood cancer led him to want to raise awareness and help others. He created PV Reporter, a website that provides easy access to information on Myeloproliferative Neoplasms […]

Repurposed Drug Interferon for the Treatment of Polycythemia Vera

interferon for MPN treatment

Drug Gives Woman with PV – Blood Cancer the Gift of Life This patient story was featured on ABC 7, Chicago News.  It is encouraging to see MPN patients share their story on the local TV news media.  The MPN Research Foundation also covered Karrie’s story in their latest newsletter.  I wish more patients would […]

Structure of Protein Pair Provides Blueprint for Future Drugs

New MPN research for medications

Publishers Note: Researcher Associate Professor Jeff Babon advises: This is very early stage research.  It gives us the blueprint to begin to develop a medicine that targets the molecule, JAK2, that is responsible for PV and other MPNs in a novel way, the same way that is used by own our natural JAK2-inhibitory protein (called SOCS1). […]

Autoimmune Disorders that May Coexist with Myeloproliferative Neoplasms (MPNs)

autoimmune diseases coexist with MPNs

by David Wallace As some MPN patients are aware of firsthand, there are a number of autoimmune diseases that may run concurrently with the condition – while these disorders are often exacerbated by the weakened immune system of MPN patients, inflammation also plays a key role. However, research has linked MPNs to a predisposition to autoimmune […]

02-Interview with Dr. Naveen Pemmaraju, MPN Specialist, MD Anderson Cancer Center

Dr. Naveen Pemmaraju, MPN Chronicles

MPN Chronicles Podcast – Interview with Dr. Naveen Pemmaraju In today’s podcast, Episode 02, I am very pleased to interview Dr. Naveen Pemmaraju, MPN Specialist from MD Anderson Cancer Center in Houston, TX. Highlights of this Episode: Insomnia in MPNs – one of the most detailed explanations on our sleep problems revealed! MDS / MPN […]

01: Polycythemia Vera Diagnosis, PV Reporter, Day 1, Doomsday or Living with a plan?

MPN Chronicles Podcast This podcast will cover the PV journey I endured since day 1 of diagnosis at the Mint Hill Urgent Care, the days spent with chest pain that felt like a heart attack was “coming soon.”  I will discuss my trip to the Emergency Room and the frustration that followed in trying to […]

A Bad day Living with Polycythemia Vera

Publishers Note: This note was sent to me on the comments/share a story part of this website and grabbed my attention.  It was written by Mike Norris.  After exchanging several emails, he said “I am not always Mr Gloom and Doom, I just waxed poetic one night and wrote out what was going on inside […]

Are Myeloproliferative Neoplasms a Rare Disease?

MPNs are not a rare disease

by David Wallace Let’s Define the term “Rare Disease” Now that all of the hoopla of “Rare Disease Day” has passed, it is time to peel away the layers of misconception, myths and false belief to uncover the truth.  First of all, let’s define the term “rare disease.”  In the United States, a rare disease […]

In Memory of Robert Rosen, Founder of the MPN Research Foundation

Bon Rosen - Fonder of the MPN Research Foundation

Bob Rosen was the first MPN patient I ever met, but that was not what he wanted you to take away from meeting him.  He was first and foremost a man of action and purpose.  It is those qualities that made it possible for him to undertake what became his legacy to the world, after […]

Occupational and Chemical Exposure that may cause MPNs, Along with Familial Clustering

dangerous occupations may cause MPNs

Some Jobs and Familial Clustering are Likely Suspects in Possibly developing an MPN by David Wallace The daily exposure to toxic chemicals over the span of a career may be a strong factor in leading numerous workers to develop an MPN.  Certain chemicals we know are problematic, include Benzene and Toluene, as well as radiation.  […]

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