MPN Community Partners

PV Reporter has been a partner-led website since its inception in 2013.  With a growing MPN population, we aim to serve patients information and resources from multiple sources.  Our MPN Community partners are a valuable part of the team effort to bring you the latest MPN research, articles, videos and reports.


MPN Research Foundation


Founded by patients for patients, the MPN Research Foundation is a catalyst for research funding in pursuit of new treatments – and eventually a cure – for myeloproliferative neoplasms (MPNs). To date, the MPNRF has funded more than $12 million in MPN research.  Research funding is only part of what we do. The MPNRF is also dedicated to helping people living with MPNs change their prognosis by serving as a valuable source of education and resources in the MPN community.


Patient Power

Patient Power® is a service of Patient Power, LLC, based in Seattle with team members around the world. Patient Power was founded by two health communications pioneers, Andrew and Esther Schorr. They previously founded, a leader in support for people with chronic illnesses and cancer. Patient Power® is devoted to helping you, the cancer patient or survivor and your family through knowledge, to get the best medicine and return to or maintain good health.


MPN Advocacy


MPN Advocacy & Education International, provides resources, quality education programs, advocacy support and services to patients with myelofibrosis, essential thrombocythemia and polycythemia vera, caregivers, physicians and all those in the MPN community. It is committed to assisting, directing and informing its constituents on pertinent issues that impact quality care, treatment accessibility, updates on current research, and updates on clinical trials

MPN Cancer Connection


MPN Cancer Connection is a 501(c)3 non-profit, whose mission is to continue helping MPN patients by expanding the wide range of resources available through PV Reporter & MPN-CC, empowering patients to better understand treatment options and improve patient care by recognizing MPNs are a cancer, offering access to a broad range of benefits and program assistance. is a leading social network for cancer patients, their friends, and family. This unique online application was developed by OMNI Health Media and combines a robust information platform consisting of current comprehensive information on cancer with a social network. It is populated with rich content to support the many ongoing needs of individuals battling cancer and is comprised of communities of individuals with similar interests in the area of cancer.


Check out more resources at MPN Cancer Connection!Click here
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