Three Busy Months with Notable Achievements in Q4 – 2015
Happy Holidays and a Healthy New Year to Everyone!
(I don’t normally share the newsletters on the website, but there was too much excitement to let this one get swept under the rug!)
As 2015 comes to a close PV Reporter has been busier than ever attending MPN events, reporting from ASH 2015 (American Society of Hematology), bringing you the latest articles, patient stories and last week a National appearance on “The Doctors” TV Show shedding light on PV- MPN Awareness to the masses.
Here are links to recent events:
- ASH 2015 Interview with Dr Angela Fleischman sharing the latest research on Inflammation in MPNs
- ASH 2015 Interview with Dr John Mascarenhas reviews clinical trials with PV Reporter
- Served on the MPN Heroes Steering Committee (also attended the event…wouldn’t miss the opportunity to meet fellow patients, physicians and advocates who are leading the charge in the MPN community, congrats to the winners! – Here are the 2015 MPN Heroes
- Created a 510(c)(3) non-profit, MPN Cancer Connection to fund PV Reporter activities and help reach more patients
MPN Awareness – Prime Time on The Doctors TV Show!!
- David Wallace, PV Reporter appeared on National TV helping spread awareness of MPNs – The Doctors TV Show – Rare Blood Cancers: What you need to know (click the preceding link or image below to see the 4 minute clip).
Frankly, I had some reservations about how this TV segment would be received, there was a ton of work behind the scenes with everyone involved. It was a HUGE success with over 6000 views on Facebook, over 200 fellow patients sharing the story with overwhelmingly positive comments (posted on Dec. 16, 2015). The Doctors TV Show created a near server crashing spike and continued increase in new traffic on PV Reporter, confirming the website is a resource that is needed now more than ever.
Now my favorite comment, because I do have a sense of humor 🙂, was “I should be up for a day time Emmy award for my acting abilities on PV symptoms.” Naturally, I was not having all of the symptoms enacted the day of filming (perhaps a little “hollywood license” was required to drive the point home), but each one of those symptoms are real and I have experienced them all at one time or another.
PV Reporter, David Wallace interviewed at ASH 2015 by Patient Power
On location at the 2015 American Society of Hematology (ASH), Carol Preston speaks with PV patient and PVReporter.com founder, David Wallace. As a polycythemia vera (PV) patient, David understands the value of knowing your resources, and he works to make those available to other patients. Listen as Carol and David discuss PV labels and his positive outlook on combination therapies.
Here is the interview:
MPN Cancer Connection
MPN patients always have the need for new resources, particularly those that provide organizations who help with Co-pays and Medication assistance. In an effort to provide resources, helping more patients, contributions to our New Non Profit Organization, MPN Cancer Connection (MPN-CC) are needed now more than ever and would be greatly appreciated. Donations are Tax deductible.
MPN Cancer Connection is a 501(c)(3) tax exempt organization.
MPN Cancer Connection Mission (MPN-CC):
To continue helping MPN patients by expanding the wide range of resources available through PV Reporter/MPN-CC, empowering patients to better understand treatment options and improve patient care by recognizing MPNs are a cancer, offering access to a wide range of benefits and program assistance.
MPN Awareness & Patient Empowerment is also a major focus. More time and expense has gone into these projects than you can possibly imagine.
++Please donate via credit card or PayPal on the SSL (secure) website – CLICK HERE ++
For Donations by Mail:
Make a check payable to “MPN Cancer Connection”
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Please mail your check to:
MPN Cancer Connection
7427 Matthews-Mint Hill Rd.
Suite 105 – PMB 274
Mint Hill, NC 28227
All donations will be acknowledged with a receipt sent to you at the email address you provide on the form. Thank you for your consideration and look for new initiatives in 2016. Any questions, suggestions are always welcomed and volunteers are needed – click here to submit.
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