Patients are Asking – MPN Expert Dr. Andrew Kuykendall Episode 2 of 3 Update on MPN Clinical Trials in 2021. The PDUFA date is the end of the review period, where the FDA has to make a decision or respond to a New Drug Application (NDA) or a Biologics License Application (BLA). Ropeginterferon and […]
September is Blood Cancer Awareness Month for MPNs
by Lou Ann Donovan National Blood Cancer Awareness Month is an annual event created by Congress in September 2010 to bring awareness to diseases of the blood, including chronic blood cancers known as Myeloproliferative Neoplasms (MPNs). Every three minutes someone in the United States is diagnosed with a blood cancer. Myeloproliferative Neoplasms (MPNs) blood cancer […]
Financial Patient Assistance Programs for MPNs
by Lou Ann Donovan The World Health Organization (WHO) published a revised document in 2008 listing MPNs as a blood cancer to promote the recognition of the genetic characterization of myeloid malignancies. Now, there are numerous organizations providing financial support and assistance with travel to a cancer center, copay and medication assistance, and many programs […]
Patients are Asking – MPN Expert Dr. Prithviraj Bose
Episode 1 of 3 in Patients are Asking Series What symptoms should I look for to see if I might be progressing from polycythemia vera to myelofibrosis? When would you typically recommend Next Generation Sequencing (NGS) and what are the benefits? Why does bone & joint pain occur and what are some possible solutions? […]
David’s Push for an MPN Specialist – A Polycythemia Vera (PV) Story
download Key Points: See an MPN Specialist Learn about your MPN Become your own advocate Shared decision making has become the norm Prepare questions for your doctor’s appointment A Clinical Trial may be your best option Seek support from knowledgeable patients on Facebook groups and other online resources Thank you to LLS for conducting this […]
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