MPN Chronicles Podcast by David Wallace I started 2020 with a goal to lose weight before the pandemic reared its ugly head. I changed the way I was eating, lobbied my hematologist for a change in PV meds (no more Rux/Peg combo, just Pegasys) and I started walking again. When Covid hit, I decided to […]
Best Mobile Apps for MPN Cancer Patients
by Deb Wesloh & Lou Ann Donovan Apps can help Manage your Life with Cancer Mobile applications for smartphones and tablets, also known as apps, are becoming a rising resource to help people with cancer manage their day-to-day life. Apps are also an easy resource for family members to stay informed and provide support for […]
The New WHO classification for Essential Thrombocythemia calls for revision of available evidences
Abstract In the 2016 revised classification of myeloproliferative neoplasms pre-fibrotic primary myelofibrosis (pre-PMF) was recognized as a separate entity, distinct from essential thrombocythemia (ET). Owing that the majority of cases falling in the pre-PMF category were previously diagnosed as ET, one may question about the need to re-evaluate the results of epidemiologic, clinical, and molecular […]
Deb Wesloh
MPN Patient Advocate Deb Wesloh lives in Bulverde Texas. She has been married to her husband Kevin for 34 years and they have three boys; Kris, Joe and Josh. She retired as an Army Officer in 2005 and now works as government civilian at an organization that assists Soldiers separating from the Army get their […]
Strategies to Beat Itching in Polycythemia Vera
How Can I Beat the Itchies? contributed by Paul Jaeger I was suffering from itching (pruritis) almost 10 years before my Polycythemia Vera was diagnosed. It’s the worst symptom my disease/condition has brought so far, although the doctor promises death at some point in my future. I had to give her $150 to tell me […]
