MPN Patients can become empowered patients or E-Patients by embracing online patient communities, state of the art research tools and shared experiences. Armed with the proper information, you can go from a patient intimidated by your doctor to someone who demands to be a partner in medical decision making. Do your research, the more you learn about your illness and appropriate treatment options, the better armed you will be in advocating for better care. Know what questions to ask your physician.
Philosophy for Patient Care – Educating the patient is essential, so the patient can guide the physician to meet his or her needs.
ALWAYS get copies of your CBC (blood panel), tests, lab results and records for your files at home. Don’t be shy, this is your information and it is crucial for you to learn and understand the test results so you can be properly prepared for future appointments.