MPN Specialists in the United States - Doctor Reviewed, and frequently updated. It is very … Learn More
MPN Patient Advocate: Strategies for Self-Advocacy and Better Health Outcomes
by David Wallace Living with myeloproliferative neoplasms (MPNs) can be challenging both physically and emotionally. MPNs are rare blood cancers that require continuous management and care. The three main types of MPNs are myelofibrosis (MF), polycythemia vera (PV), and essential thrombocythemia (ET). As a patient, it is crucial to become your own advocate in order […]
Overcoming fear: How avid hiker and PV patient Gary put one foot in front of the other until he found a treatment that worked
Part of my inspiration for becoming an advocate and sharing information on PV Reporter is to encourage others living with PV to educate themselves and maintain a positive mindset, despite their diagnosis. I know how it feels to hear the words, “you have cancer,” and how that fear can impact one’s outlook on life. Throughout […]
Ojjaara, FDA Approved for Treatment of Myelofibrosis with Anemia
September 15, 2023 Ojjaara (momelotinib) approved in the US as the first and only treatment indicated for myelofibrosis patients with anemia Approval is for use in myelofibrosis patients with anemia regardless of prior myelofibrosis therapy Nearly all myelofibrosis patients are estimated to develop anemia over the course of the disease, and over 30% will discontinue […]
Polycythemia Vera Exercise Recommendations
Abstract Background Exercise therapy during cancer treatment reduces symptom burden and improves quality of life (QoL). Polycythemia vera (PV) is a myeloproliferative neoplasia associated with good overall survival (up to decades) but a significant symptom burden, including thromboembolic events and dysesthesias. There are no specific exercise recommendations for patients with PV. Thus, we aimed to […]
How should we define disease modification in MPN?
by David Wallace A disease modifying drug for MPN patients specifically targets disease-initiating stem cells that lead to MPN phenotypes, leading to regression of the disease while improving associated complications. Our guest MPN expert is Dr. Ghaith Abu-Zeinah from Weill Cornell Medicine in NYC. Listen in to learn more.
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