PV Reporter

MPN Information and Research Hub

PV Reporter was created to provide “easy access” to pertinent information on Polycythemia Vera (PV),  Essential Thrombocythemia (ET) and Myelofibrosis (MF).

MPN Specialists

MPN Specialists

One of the most important things a patient can do is see a true MPN Specialist, the … Learn More

Blog

Blog

The Blog Page provides timely, relevant news items, research reports, “‘patient stories”, … Learn More

Understanding MPNS

Understanding MPNS

Partner provided content: MPN Research Foundation AN OVERVIEW OF … Learn More

MPN Search

MPN Search - Myeloproliferative Neoplasm (MPN) Custom Search of "Authority Sites" MPN … Learn More

MPN Chronicles Podcast

MPN Chronicles Podcast

This Podcast will cover many elements of my Polycythemia Vera (PV) journey, from the day … Learn More

Patient Stories

PATIENT STORIES

Our fellow MPN Patients share their trials and tribulations with Polycythemia Vera, … Learn More

Need Someone to Talk To?

Need Someone to Talk to?

Would you like to speak with an Information Specialist to obtain information and resources … Learn More

Support Group

MPN support group on PV Reporter

This group is for people with myeloproliferative neoplasms (MPNs).  MPNs include … Learn More

Clinical Trial Finder image

Clinical Trial Finder

Free, No Personal Information Required

Search for MPN Clinical Trials that may help you find new treatments and medical approaches for your myelofibrosis (MF), polycythemia vera (PV) or essential thrombocythemia (ET).

ClinicalTrials.gov is difficult to use for patients, as it is primarily a resource for doctors and clinicians.  Our Clinical Trial Finder restructures the trial information - providing "easy access" while improving patient's understanding of the trial.

Search for MPN Clinical Trials

Featured Clinical Trials

Surpass ET Clinical Trial

PharmaEssentia is the sponsor. Ropeginterferon Alfa-2b in phase 3 clinical trial. Ropeginterferon Alfa-2b vs. Anagrelide in Essential Thrombocythemia patients with Hydroxyurea resistance or … Learn More

Transform 1 Myelofibrosis Clinical Trial

Abbvie is the sponsor. Navitoclax in phase 3 clinical trial. Study of Oral Navitoclax Tablet In Combination With Oral Ruxolitinib Tablet When Compared With Oral Ruxolitinib Tablet To Assess Change … Learn More

Transform 2 Myelofibrosis Clinical Trial

Abbvie is the sponsor. Navitoclax in phase 3 clinical trial. Study of Oral Navitoclax Tablet in Combination With Oral Ruxolitinib Tablet to Assess Change in Spleen Volume in Adult Participants With … Learn More

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MPN Clinical Trials 2021 Update

 Patients are Asking – MPN Expert Dr. Andrew Kuykendall Episode 2 of 3 Update on MPN Clinical Trials in 2021.  The PDUFA date is the end of the review period, where the FDA has to make a decision or respond to a New Drug Application (NDA) or a Biologics License Application (BLA).  Ropeginterferon and […]

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September is Blood Cancer Awareness Month for MPNs

by Lou Ann Donovan National Blood Cancer Awareness Month is an annual event created by Congress in September 2010 to bring awareness to diseases of the blood, including chronic blood cancers known as Myeloproliferative Neoplasms (MPNs).  Every three minutes someone in the United States is diagnosed with a blood cancer. Myeloproliferative Neoplasms (MPNs) blood cancer […]

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Financial Patient Assistance Programs for MPNs

by Lou Ann Donovan The World Health Organization (WHO) published a revised document in 2008 listing MPNs as a blood cancer to promote the recognition of the genetic characterization of myeloid malignancies.  Now, there are numerous organizations providing financial support and assistance with travel to a cancer center, copay and medication assistance, and many programs […]

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Patients are Asking – MPN Expert Dr. Prithviraj Bose

 Episode 1 of 3 in Patients are Asking Series What symptoms should I look for to see if I might be progressing from polycythemia vera to myelofibrosis?  When would you typically recommend Next Generation Sequencing (NGS) and what are the benefits?  Why does bone & joint pain occur and what are some possible solutions? […]

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David’s Push for an MPN Specialist – A Polycythemia Vera (PV) Story

download Key Points: See an MPN Specialist Learn about your MPN Become your own advocate Shared decision making has become the norm Prepare questions for your doctor’s appointment A Clinical Trial may be your best option Seek support from knowledgeable patients on Facebook groups and other online resources Thank you to LLS for conducting this […]

Welcome to PV Reporter

PV Reporter was created to provide “easy access” to pertinent information on Polycythemia Vera (PV),  Essential Thrombocythemia (ET) and Myelofibrosis (MF).  These disorders are Myeloproliferative Neoplasms (MPNs), a closely related group of blood cancers where the bone marrow cells that produce the body’s blood cells function and develop abnormally.

If you are a newly diagnosed patient or researching MPNs, make PV Reporter your starting point.  While many existing MPN websites provide excellent content, they tend to be internally focused or lack external search capabilities.  PV Reporter solves that problem with MPN Search, a “custom search engine” retrieving exactly the information you are looking for!

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