One of the most important things a patient can do is see a true MPN Specialist, the … Learn More

MPN Information and Research Hub
by David Wallace https://youtu.be/vsk2OBtJmIs Dr. Ghaith Abu-Zeinah, Assistant Professor at Weill Cornell Medical College, Silver MPN Center is our MPN specialist … Continue Reading
Part 4 in a New Series: "Addressing MPN Symptoms" Prevalence of Chronic Pain and High-Impact Chronic Pain in Cancer Survivors in the United States Jiang C, Wang H, … Continue Reading
by David Wallace As some MPN patients are aware of firsthand, there are a number of autoimmune diseases that may run concurrently with the condition – while these … Continue Reading
by Marcy Worthington, Charla Billick, Christine Kelly Kennedy and multiple contributions from members of Facebook Support Group When we have an appointment scheduled … Continue Reading
Fighting MPN cancer? Be mindful of stress. by David Wallace If you have been diagnosed with MPN cancer, remember that it is just as important to take care of your … Continue Reading
How Can I Beat the Itchies? contributed by Paul Jaeger I was suffering from itching (pruritis) almost 10 years before my Polycythemia Vera was diagnosed. It's the … Continue Reading
PV Reporter was created to provide “easy access” to pertinent information on Polycythemia Vera (PV), Essential Thrombocythemia (ET) and Myelofibrosis (MF).
One of the most important things a patient can do is see a true MPN Specialist, the … Learn More
The Blog Page provides timely, relevant news items, research reports, “‘patient stories”, … Learn More
An Overview of Myeloproliferative Neoplasms A myeloproliferative neoplasm (MPN) … Learn More
MPN Search - Myeloproliferative Neoplasm (MPN) Custom Search of "Authority Sites" MPN … Learn More
This Podcast will cover many elements of my Polycythemia Vera (PV) journey, from the day … Learn More
Our fellow MPN Patients share their trials and tribulations with Polycythemia Vera, … Learn More
Would you like to speak with an Information Specialist to obtain information and resources … Learn More
This group is for people with myeloproliferative neoplasms (MPNs). MPNs include … Learn More
Search for MPN Clinical Trials that may help you find new treatments and medical approaches for your myelofibrosis (MF), polycythemia vera (PV) or essential thrombocythemia (ET).
ClinicalTrials.gov is difficult to use for patients, as it is primarily a resource for doctors and clinicians. Our Clinical Trial Finder restructures the trial information - providing "easy access" while improving patient's understanding of the trial.
Ionis Pharmaceuticals is the sponsor. Sapablursen, formerly known as IONIS-TMPRSS6-LRx in phase 2 clinical trial. The main purpose of this study is to evaluate the safety and efficacy of IONIS-TMPRSS6-LRx in reducing the frequency of phlebotomy and in improving quality of life assessments in … Learn More
MPN Cancer Connection A resource for MPN patients MPN Cancer Connection, where the future is bright for the MPN community, filled with opportunity with new clinical trial treatments, offering a wide range of MPN resources and information, all for improved patient care and quality of life. MPN-CC was … Learn More
by David Wallace What is fibrosis in myelofibrosis? Myelofibrosis is characterized by an accumulation of fibrous tissue (fibrosis) or scar tissue in the bone marrow. As fibrosis increases, it impairs the bone marrow’s ability to produce healthy blood cells. This can cause numerous symptoms, including anemia, fatigue, weakness and an increased risk of bleeding and […]
Atrium Health recently announced Dr. Ruben A. Mesa has been named president and executive director of its cancer service line – which includes both Atrium Health Levine Cancer Institute and Atrium Health Wake Forest Baptist Comprehensive Cancer Center – and vice dean for cancer programs at Wake Forest University School of Medicine. Mesa will assume the roles filled by Dr. […]
Simple Summary The myeloproliferative neoplasms (MPNs) are chronic blood cancers characterized by elevated blood cell counts and, after decades, the development of bone marrow failure. Blood clots are common and contribute massively to the symptom burden. Treatment with interferon (IFN) alpha-2 normalizes elevated blood cell counts within weeks to months. This treatment has been used […]
Abstract Polycythemia vera (PV) is a myeloproliferative neoplasm associated with increased risk of thrombotic events (TE) and death. Therapeutic interventions, phlebotomy and cytoreductive medications, are targeted to maintain hematocrit levels < 45% to prevent adverse outcomes. This retrospective observational study examined medical and pharmacy claims of 28,306 PV patients initiating treatment for PV in a data period […]
The PharmaEssentia Innovation Research Center (PIRC) will advance the company’s diverse pipeline and research footprint in the U.S., driving job creation January 4, 2023 8:00 AM EST TAIPEI,Taiwan–(BUSINESS WIRE)–PharmaEssentia Corporation, (TPEx:6446), a global biopharmaceutical innovator headquartered in Taiwan leveraging deep expertise and proven scientific principles to deliver new biologics in hematology and oncology, today announced […]
PV Reporter was created to provide “easy access” to pertinent information on Polycythemia Vera (PV), Essential Thrombocythemia (ET) and Myelofibrosis (MF). These disorders are Myeloproliferative Neoplasms (MPNs), a closely related group of blood cancers where the bone marrow cells that produce the body’s blood cells function and develop abnormally.
If you are a newly diagnosed patient or researching MPNs, make PV Reporter your starting point. While many existing MPN websites provide excellent content, they tend to be internally focused or lack external search capabilities. PV Reporter solves that problem with MPN Search, a “custom search engine” retrieving exactly the information you are looking for!