03: Learn Benefits of Becoming your own MPN Patient Advocate

MPN Patient advocate

MPN Chronicles Podcast – 03, PV Reporter, Day 3, 2nd Trip to ER in 3 Days by David Wallace Chest pain continued to worsen after 1st trip to the ER, 2 days earlier.  This was an immediate cause for immediate concern and a return trip to the ER on day 3 with Polycythemia Vera (PV).  […]

Cancer Survivor helping others – Newspaper article on David Wallace

PV Reporter, David Wallace, MPN Awareness, patient advocate

PV Reporter gets Local News Coverage for his work on Patient Advocacy and MPN Awareness by Lacey Hampton David Wallace’s experience after being diagnosed with a type of blood cancer led him to want to raise awareness and help others. He created PV Reporter, a website that provides easy access to information on Myeloproliferative Neoplasms […]

Repurposed Drug Interferon for the Treatment of Polycythemia Vera

interferon for MPN treatment

Drug Gives Woman with PV – Blood Cancer the Gift of Life This patient story was featured on ABC 7, Chicago News.  It is encouraging to see MPN patients share their story on the local TV news media.  The MPN Research Foundation also covered Karrie’s story in their latest newsletter.  I wish more patients would […]

01: Polycythemia Vera Diagnosis, PV Reporter, Day 1, Doomsday or Living with a plan?

MPN Chronicles Podcast This podcast will cover the PV journey I endured since day 1 of diagnosis at the Mint Hill Urgent Care, the days spent with chest pain that felt like a heart attack was “coming soon.”  I will discuss my trip to the Emergency Room and the frustration that followed in trying to […]

A Bad day Living with Polycythemia Vera

Publishers Note: This note was sent to me on the comments/share a story part of this website and grabbed my attention.  It was written by Mike Norris.  After exchanging several emails, he said “I am not always Mr Gloom and Doom, I just waxed poetic one night and wrote out what was going on inside […]

Over the Counter Combo of Zyrtec and Zantac helping PV patients get relief from Itching!

zantac and zyrtec for polycythemia

Part 1 in a Series – “Mast Cell Mania” at the Root of many MPN Symptoms by David Wallace Background A high percentage of polycythemia vera – MPN patients suffer from Aquagenic Pruritus, a fancy clinical term for itching.  Few patients presenting with itching are tested for PV, but it is a classic symptom that […]

Heidi’s MPN Story – An Increasing Trend in Patient Advocacy

by Heidi Cascarano “Watch and Wait…” What other cancer, in the 21st century, is so misunderstood that your local doctor will struggle to diagnose you, possibly tell you he has a few other patients with it, then advise you to do nothing but get a therapeutic phlebotomy and take a baby aspirin?  You get online […]

Jakafi One Step Closer to Approval for Polycythemia Vera

Jakafi for Polycythemia Vera

Jakafi Improves Symptoms in PV In phase 3 randomized controlled trial, Jakafi (ruxolitinib) improved several key symptoms in polycythemia vera, according to Dr Srdan Verstovsek of MD Anderson Cancer Center in Houston. Results from the RESPONSE trial were presented at the 2014 ASCO (American Society of Clinical Oncology) annual meeting in Chicago.  PV is a […]

Jason Rappaport’s Polycythemia Vera Story

jason rappaport polycythemia vera story

Publisher’s Introduction by David Wallace After experiencing my own “unpleasant….putting it kindly” tango with Poly, I transitioned through various stages of grief and have seen other patients travel a similar path over the last few years. Rarely have I seen a newly diagnosed patient jump in full bore with both feet, wet behind the ears […]

Emerging Drugs for Polycythemia Vera

pegasys MPN

Polycythem Vera – Expert Opinion on Emerging Drugs Raoul Tibes, Ruben A Mesa Mayo College of Medicine, Mayo Clinic, Mayo Clinic Cancer Center, Division of Hematology & Medical Oncology , 13400 E. Shea Boulevard, Scottsdale, AZ 85259 , USA +1 480 301 6740 ; +1 480 301 4675 ; . Expert Opinion on Emerging Drugs (Impact Factor: […]

Dr Silver on the Curability of Polycythemia Vera with Interferon

Dr. Richard Silver delivers a stellar presentation – On the “Curability” of Polycythemia Vera with Interferon. Presented February 2013, Mayo Clinic, Scottsdale, Arizona.   Richard Silver PV

error: Content is protected !
Malcare WordPress Security