MPN Resources

Myeloproliferative Neoplasms and Polycythemia Vera Resources

Every form of treatment has risks & rewards. The "informed patient" has increased odds for a better quality of life.

Every treatment has risks & rewards. The “informed patient” has increased odds for a better quality of life.

There are many disparate MPN resources on the web. PV Reporter covers all three Myeloproliferative Neoplasms (MPN) – Polycythemia Vera (PV), Essential Thrombocythemia (ET), and Myelofibrosis (MF).

PV Reporter is focused on providing “easy access” to research data, news reports, stories, and helpful hints designed to assist the Polycythemia Vera patient while also providing valuable resources for ALL MPN PATIENTS.  Since the three diseases are all related bone marrow disorders, significant content will cover the entire MPN spectrum.

Resources and Programs for MPN Patients (new for 2018)

Checkout the wide range of resources available for MPN/Cancer patients.  Provided by our non profit sister organization MPN Cancer Connection (MPN-CC).  Click on the image below for updated resources.


2017 Presentations – Joyce Niblack MPN Patient Conference

(hosted by MPN Education Foundation & Mayo Clinic, February 25-26, 2017)

Click on Each link below to view or download the complete presentation:


MPN Resource Websites

Polycythemia Vera Resources

 Additional MPN Resources

Facebook Groups – These are closed groups and require you to request to join

light at the end of the tunnel for MPN Patients

There is light at the end of the tunnel.


  • Whatever you do, one of the first recommendations for an MPN patient who smokes is QUIT – QuitDay is chock full of excellent resources to help you quit smoking, Quit Smoking resources.

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