Phyllis George dies from Polycythemia Vera complications

The MPN Community needs a Celebrity Spokesperson to bring awareness of our “Rare Blood Disease” by David Wallace I’m saddened to hear that former Kentucky first lady and Miss America, Phyllis George passed away from a “rare blood disease” at 70.  She was a true pioneer in the TV broadcast industry, as the first woman […]

Suffering from Signs and Symptoms of Polycythemia Vera?

Thrilled for Polycythemia Vera (PV) Diagnosis! Publisher’s Note (David Wallace): It’s rare that I will accept an anonymous patient story, just one other in 7 years.  Starting back in October 2019, a gentleman who found PV Reporter at the top of a google search, reached out offering to share a “summary” of his story.  We […]

Podcast

MPN Chronicles Podcasts This Podcast will cover many elements of my Polycythemia Vera (PV) journey, from the day of diagnosis til present.  Hopefully you will find tips in living with an MPN that you can relate to, while understanding the need to become your own advocate.  The Podcast is not to be construed as medical […]

Polycythemia Vera Brain Fog

Part 2 in a New Series:  “Addressing MPN Symptoms”  Check out the entire series (2020 update)  Over the Counter Combo of Zyrtec and Zantac helping PV patients get relief from itching Polycythemia Vera Brain Fog Nutrition and Diet May Reduce Chronic Inflammation while Improving Symptom Burden in MPN patients Chronic Pain in Over 50 percent […]

01: Polycythemia Vera Diagnosis, PV Reporter, Day 1, Doomsday or Living with a plan?

MPN Chronicles Podcast This podcast will cover the PV journey I endured since day 1 of diagnosis at the Mint Hill Urgent Care, the days spent with chest pain that felt like a heart attack was “coming soon.”  I will discuss my trip to the Emergency Room and the frustration that followed in trying to […]

Concomitant JAK2 V617F-positive PV and BCR-ABL-positive CML with ruxolitinib and dasatinib

Citation: Blood Cancer Journal (2015) 5, e351; doi:10.1038/bcj.2015.77 Published online 2 October 2015 The combination of ruxolitinib and dasatinib was safe and effective in the treatment of concomitant PV and CML in this patient A Zhou1, E M Knoche1, E K Engle1, D A C Fisher1 and S T Oh1 1Division of Hematology, Washington University School of Medicine, St Louis, MO, USA […]

PV For Newbies – A Patient’s Perspective

by Dave Stewart YOU’VE JUST BEEN DIAGNOSED WITH PV… …and now, most likely, you’re looking online for info…anything…to tell you what to expect, what’s next, how long you’re going to live… First things first – Don’t panic.  Easier said than done, but learning how to control your stress and keep it at a healthy level […]

Dr Heinz Gisslinger Enlightens us – Treating MPNs with Interferon for 30 Years

AOP 2014 – The Next Generation Interferon Second in ASH 2014 Series by David Wallace Dr Heinz Gisslinger from Vienna, Austria is a pioneer in treating MPN patients with Interferon (IFN).  PV Reporter sits down with Dr Gisslinger at ASH 2014 to discuss the history of Interferon treatment in MPNs, as well as AOP 2014. […]

Polycythemia Vera Pre-diagnosis Patient Report

Publisher’s Intro by David Wallace As a certified, red-blooded JAK2 positive Polycythemia Vera (PV) patient, I have always been fascinated by the events leading up to a PV diagnosis. By sharing our stories, perhaps we offer “a dose of comfort” to the new or recently diagnosed.  When they read of struggles that other patient’s experience, […]

Synopsis of ASH 2013 Abstract – Peginvera study

by Dr. Angela Fleischman Synopsis of ASH 2013 Abstract: “Analysis of Molecular Responses and Chromosomal Aberrations in patients with PV treated with Peg-Proline-Interferon Alpha-2b (AOP2014/P1101) in the Peginvera study” by Them et al This abstract describes the chromosomal analysis of PV patients on the Peginvera study (a study investigating a long-acting IFNa which can be […]

Riggins Black Polycythemia Vera Story

Interferon use in PV – A Patient’s Perspective by Riggins Black Looking back at old CBCs, I found I “might” have had PV since 1971. By the way, this is a good reason for you all to become guardians of your medical records (no one will preserve them as well as you can). Although I’ve always […]

error: Content is protected !