download Key Points: See an MPN Specialist Learn about your MPN Become your own advocate Shared decision making has become the norm Prepare questions for your doctor’s appointment A Clinical Trial may be your best option Seek support from knowledgeable patients on Facebook groups and other online resources Thank you to LLS for conducting this […]
Michael’s MPN Story
by Michael Movsky My MPN journey began at the hematologist’s office on a pleasant March day in 2018, when she confirmed a diagnosis of Essential Thrombocytosis (ET) through various factors, including the detection of the JAK 2 mutation…at which point I was handed an informational booklet on the topic from the Leukemia and Lymphoma Society. […]
Polycythemia Vera patient advocate on living with MPN, Diane’s story
September Blood Cancer Awareness Month Spotlight by David Wallace David Wallace, your host with PV Reporter, talks to fellow PV patient advocate Diane Rose about living with Polycythemia Vera. Diane shares her patient story as we talk about how she was diagnosed, treatment, ET shifting to PV, being your own advocate, fear of needles and […]
Suffering from Signs and Symptoms of Polycythemia Vera?
Thrilled for Polycythemia Vera (PV) Diagnosis! Publisher’s Note (David Wallace): It’s rare that I will accept an anonymous patient story, just one other in 7 years. Starting back in October 2019, a gentleman who found PV Reporter at the top of a google search, reached out offering to share a “summary” of his story. We […]
MPN Facebook Group Leader, Patient Advocate Spotlight
Tips on Living with MPN – Reflections on 2020 by Christine Kennedy As the New Year is under way, its a time of reflection. MPN are an evolving disease. The difference in the years of running MPN groups has shown in what were arguments into basic knowledge of diagnoses. The arguments of diagnoses have settled […]
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