What I Learned from going through Stem Cell Transplant for Myelofibrosis

No Time Like the Present – To Kick Cancer’s Butt by Heidi Cascarano It wasn’t in the plans.  I had lived with the diagnosis of Polycythemia Vera, and then Myelofibrosis for 9 years.  I was told I could live several years with them and that progression was the exception.  My hope was amplified by my […]

Ten Year Anniversary Living with Polycythemia Vera Blood Cancer

Inspire by Living!  by David Wallace Your numbers do NOT always reflect how you feel, so important to remember! I’ve felt like crap before and my numbers were good.  How you feel is one of the most important measurement criteria, in my opinion.  Counts were off on my last heme visit, about a month ago, […]

Polycythemia Vera Brain Fog

MPN Symptom Uncovered Part 2 in a New Series – “Addressing MPN Symptoms” (2019) by David Wallace This is no great “epiphany moment” article, just a quick report on a real myeloproliferative neoplasm (MPN) symptom I experience from time to time.  Most mornings, I make a healthy smoothie to get me up and rolling.  This […]

Celgene’s Fedratinib Given FDA Priority Review for New Drug Application in Myelofibrosis

PV Reporter was first to break the news on the Expanded Access Program for Fedratinib for Myelofibrosis Patients on November 16th, 2018. The next logical step for Celgene was filing for New Drug Application – Granted by the FDA on March 5th, 2019 Celgene Corporation announced today the U.S. Food and Drug Administration has accepted […]

Constellation Pharmaceuticals Update on MANIFEST Clinical Trial of CPI-0610 in Myelofibrosis

CAMBRIDGE, Mass., Jan. 03, 2019 (GLOBE NEWSWIRE) – Constellation Pharmaceuticals, Inc. (Nasdaq: CNST), a clinical-stage biopharmaceutical company using its expertise in epigenetics to discover and develop novel therapeutics, today provided an update on progress in the MANIFEST Phase 2 clinical trial of CPI-0610 in myelofibrosis (MF). The Company also reviewed its 2018 accomplishments and announced its data […]

04: First Hematologist Appointment for Polycythemia Vera Patient

MPN Chronicles Podcast – 04, PV Reporter, Always Ask Your Doctor for your CBC or your test results and keep a binder to Monitor your Progress by David Wallace After 2 visits to the ER, I finally had my first hematologist meeting.  She reviewed the tests that were done in the ER and ran a […]

PV Reporter partners with PAN Foundation on MPN Patient Assistance Programs

Patient Assistance Programs, Medications for MPN Patients by David Wallace PV Reporter is very proud to announce a new partnership with the PAN Foundation.  Myeloproliferative Neoplasm (MPN) patients may be eligible for $8,500 per year (or more if a 2nd grant is needed/approved) in assistance assuming you meet the eligibility criteria which are very reasonable. […]

Breaking news on Celgene’s Fedratinib for Myelofibrosis patients!

by David Wallace Fedratinib by Celgene, offered on Expanded Access Program (EAP) for Myelofibrosis Patients This is hot off the press!  So hot, that no one has covered it until now – brought to you by PV Reporter.  I knew after combing through the ASH (American Society of Hematology) abstracts that something was missing.  That […]

Safety and efficacy of combo therapy of interferon-a2 and ruxolitinib in polycythemia vera and myelofibrosis

by Stine Ulrik Mikkelsen, Lasse Kjær, Mads Emil Bjørn, Trine Alma Knudsen, Anders Lindholm Sørensen, Christen Bertel Lykkegaard Andersen, Ole Weis Bjerrum, Nana Brochmann, Daniel El Fassi, Torben A. Kruse, Thomas Stauffer Larsen, Hans Torben Mourits‐Andersen, Claus Henrik Nielsen, Niels Pallisgaard, Mads Thomassen, Vibe Skov, Hans Carl Hasselbalch Abstract Interferon‐α2 reduces elevated blood cell counts […]

03: Learn Benefits of Becoming your own MPN Patient Advocate

MPN Chronicles Podcast – 03, PV Reporter, Day 3, 2nd Trip to ER in 3 Days by David Wallace Chest pain continued to worsen after 1st trip to the ER, 2 days earlier.  This was an immediate cause for immediate concern and a return trip to the ER on day 3 with Polycythemia Vera (PV).  […]

 
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