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Ron Anderson Ron Anderson, LA Support Group Coordinator, received a bone marrow transplant eight years ago. His brother, a perfect match, was his donor. We asked his brother to share his experience to get a donor's perspective. Was there ever a time, once you knew you were a perfect match [...]
Tue, Mar 07, 2017, Continue reading at the source
mpn mutation
By Marina Sampanes Peed The identifiers among people living with Myeloproliferative Neoplasms (MPN) are getting more complicated, thanks to all the discoveries in the last few years. We tend to identify ourselves with the current diagnosis and gene mutation(s) identified through bone marrow biopsy or blood tests. Here's a typical conversation at [...]
Mon, Mar 06, 2017, Continue reading at the source
Ann Brazeau, CEO, MPN Advocacy and Education International, and Dr. Raajit Rampal, MD, PhD, Memorial Sloan Kettering Cancer Center, attended an “open” meeting held by the US Department of Veterans Affairs with the National Academy of Sciences' (NAS) Committee on Agent Orange and Health. The meeting, held in Washington, DC [...]
Mon, Mar 06, 2017, Continue reading at the source
Annual Hematology Meeting Updates: CML and MPN
A Solid Summary on the Latest MPN Research in 2017 Drs. Joseph R. Mikhael and Ruben A. Mesa analyze and discuss pertinent clinical studies and late breaking updates pertaining to the care of patients with chronic myelogenous leukemia (CML) and myeloproliferative neoplasms (MPN) in this Best of the Day discussion from [...]
Sun, Jan 29, 2017, Continue reading at the source
Long Term Exposure to Radiation puts you at higher risk for MPN A Savannah River Site Worker The Savannah River Site is on a list of qualified places for Special Exposure Cohort Employees (SEC) The SEC allows eligible claimants to be compensated without the completion of a NIOSH radiation dose reconstruction or determination [...]
Mon, Jan 02, 2017, Continue reading at the source
A survey is being conducted to learn more about the most common symptoms experienced by ET patients, and how these symptoms affect the lives of patients. This information may help improve how the patient's experience is accounted for in clinical trials that measure the effect of treatments. The study is [...]
Wed, Dec 21, 2016, Continue reading at the source
Leukemia cure could be on the way, says med-tech firm Biosight
New Leukemia Research in Phase I/IIa Clinical Trial Biosight, an Israeli pharmaceutical development company that is working on a cure for leukemia, this week closed an investment of $13 million led by pharmaceutical investment firm Arkin Holdings, run by pharma mogul Mori Arkin, and US-based venture firm Primera Capital. The money [...]
Tue, Oct 18, 2016, Continue reading at the source
Study Identifies Factors Associated With Hearing Loss in Polycythemia Vera
Study Identifies Factors Associated With Hearing Loss in Polycythemia Vera High platelet counts and hemoglobin/hematocrit levels may be associated with hearing loss in patients with polycythemia vera. ONA “Researchers found that the mean hemoglobin and hematocrit levels of the polycythemia vera group were 16.7 g/dL and 50.4%, respectively, vs 13.4 g/dL and 40.3% [...]
Wed, Sep 21, 2016, Continue reading at the source
For anyone who lives a fast-paced life, it is easy to sometimes forget our need to take care of ourselves and to listen to our bodies. It is easy to get distracted from the importance of a healthy lifestyle when it seems there is so much to be done. But it [...]
Tue, Mar 15, 2016, Continue reading at the source
February 29th is Rare Disease Day: 4 Reasons You Should Care Even though MPN patients who have a rare disease many may have never heard of "Rare Disease Day" and know next to nothing about the impact rare disorders have on society. Rare diseases play a larger role in public [...]
Mon, Feb 29, 2016, Continue reading at the source
It's World Cancer Day There has been, from time to time, a question about whether myeloproliferative neoplasms are cancers. Let's be clear, they are. But don't take our word for it. Cancer Support Community defines Myeloproliferative Neoplasms (MPNs) as types of blood cancers that overproduce blood cells in the bone [...]
Mon, Feb 01, 2016, Continue reading at the source
The applications for the second found of MF Challenge funding will be reviewed on Friday, May 31st in Chicago. In addition to members of the Foundation's Scientific Advisory Board, thought leaders from fibrosis will be joining the review panel as the proposals are judged. In addition to scientific merit, the [...]
Sun, May 26, 2013, Continue reading at the source

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