by Marcy Worthington, Charla Billick, Christine Kelly Kennedy and multiple contributions from members of the Polycythemia Vera Supportive Friends Support Group When we have an appointment scheduled with our doctor (hopefully an MPN Specialist at some point) it is helpful to have a list of questions to be properly prepared. Â It also helps to know […]
PV For Newbies – A Patient’s Perspective
by Dave Stewart YOU’VE JUST BEEN DIAGNOSED WITH PV… …and now, most likely, you’re looking online for info…anything…to tell you what to expect, what’s next, how long you’re going to live… First things first – Don’t panic.  Easier said than done, but learning how to control your stress and keep it at a healthy level […]
Strategies to Beat Itching in Polycythemia Vera
How Can I Beat the Itchies? contributed by Paul Jaeger I was suffering from itching (pruritis) almost 10 years before my Polycythemia Vera was diagnosed. Â It’s the worst symptom my disease/condition has brought so far, although the doctor promises death at some point in my future. Â I had to give her $150 to tell me […]
Bone & Joint Pain in MPN Patients Explained
Pearls of wisdom (1995) by the late Dr. Gilbert Dear Members: For your information re bone and joint pains in MPN. Several of you have mentioned that you suffer from bone and/or joint pains – sometimes attributed to arthritis.  I have seen a number of patients who have this complaint and it has been related […]
