PV Reporter Attends MPN Horizons 2019, 4th Annual Global Conference

4th year in Attendance by David Wallace On October 25th, 2019 approximately 50 MPN advocates representing over 25 advocacy groups from around the world met in Lisbon, Portugal for 3 days.  The objective was to share best practices of support and advocacy activities, learn about new MPN research and discuss issues that patients in each […]

What I Learned from going through Stem Cell Transplant for Myelofibrosis

No Time Like the Present – To Kick Cancer’s Butt by Heidi Cascarano It wasn’t in the plans.  I had lived with the diagnosis of Polycythemia Vera, and then Myelofibrosis for 9 years.  I was told I could live several years with them and that progression was the exception.  My hope was amplified by my […]

 
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