What I Learned from going through Stem Cell Transplant for Myelofibrosis

beat myelofibrosis MF

No Time Like the Present – To Kick Cancer’s Butt by Heidi Cascarano It wasn’t in the plans.  I had lived with the diagnosis of Polycythemia Vera, and then Myelofibrosis for 9 years.  I was told I could live several years with them and that progression was the exception.  My hope was amplified by my […]

Celgene’s Fedratinib Given FDA Priority Review for New Drug Application in Myelofibrosis

PV Reporter was first to break the news on the Expanded Access Program for Fedratinib for Myelofibrosis Patients on November 16th, 2018. The next logical step for Celgene was filing for New Drug Application – Granted by the FDA on March 5th, 2019 Celgene Corporation announced today the U.S. Food and Drug Administration has accepted […]

Cancer Survivor helping others – Newspaper article on David Wallace

PV Reporter, David Wallace, MPN Awareness, patient advocate

PV Reporter gets Local News Coverage for his work on Patient Advocacy and MPN Awareness by Lacey Hampton David Wallace’s experience after being diagnosed with a type of blood cancer led him to want to raise awareness and help others. He created PV Reporter, a website that provides easy access to information on Myeloproliferative Neoplasms […]

Incyte conducts Phase 2 Clinical Trials for Myelofibrosis and Essential Thrombocythemia

Incyte clinical trials

Myelofibrosis A Phase 2 Study of the Safety, Tolerability, and Efficacy of INCB050465 in Combination With Ruxolitinib in Subjects With Myelofibrosis The purpose of this study is to evaluate the safety, tolerability, and efficacy of the combination of INCB050465 and ruxolitinib in subjects with myelofibrosis Talk to your doctor if you are interested in participating […]

Heidi’s MPN Story – An Increasing Trend in Patient Advocacy

by Heidi Cascarano “Watch and Wait…” What other cancer, in the 21st century, is so misunderstood that your local doctor will struggle to diagnose you, possibly tell you he has a few other patients with it, then advise you to do nothing but get a therapeutic phlebotomy and take a baby aspirin?  You get online […]

Gary Vogt’s Rollercoaster Ride with Myelofibrosis

Publisher’s Intro by David Wallace I met Gary and Kathy Vogt by sheer coincidence while taking the shuttle bus from the San Francisco airport to our downtown hotel, in early December 2014.  We were there for the MPN Heroes Award Event, while I was also covering the ASH conference for PV Reporter. Numerous things struck […]

Reversal Of Bone Marrow Fibrosis in Myelofibrosis

Imetelstat abstract from ASH

Imetelstat, a Telomerase Inhibitor, Induces Morphologic and Molecular Remissions In Myelofibrosis Geron is studying Imetelstat as a treatment for Myelofibrosis, a disease in which abnormal blood cells build up in the bone marrow, forming thick scar tissues that slows the production of healthy blood cells.  Other MF drugs treat the symptoms of the disease (Jakafi). […]

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