PV Reporter, in partnership with Sanguine Biosciences, is reaching out to raise awareness about an at-home research opportunity for patients diagnosed with Myelofibrosis. What is the goal of the at-home research? The goal of this research is to enhance their understanding of Myelofibrosis, in support of developing new diagnostic and treatment options for patients living […]
Chet Lemon Dies from PV Complications at 70
Chet Lemon, a beloved former Major League Baseball outfielder and 1984 World Series winner, died at the age of 70. Lemon passed on Thursday, May 8, 2025, after a decades-long battle with polycythemia vera (PV), a rare blood disorder, and its associated complications. Lemon, a three-time All-Star, was diagnosed with polycythemia vera in 1990, toward […]
FDA Grants Fast Track to Givinostat for Polycythemia Vera
The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to givinostat, an oral histone deacetylase inhibitor (HDACi) developed by Italfarmaco S.p.A., for the treatment of polycythemia vera (PV), a rare hematologic malignancy. This designation aims to expedite the development and review of drugs that address serious conditions with unmet medical needs. PV […]
Gut Microbiome and Polycythemia Vera: What You Should Know
by David Wallace Recent research has uncovered significant differences in the gut microbiota of individuals with polycythemia vera (PV) compared to healthy individuals. Polycythemia vera, an uncommon blood cancer classified as a myeloproliferative neoplasm (MPN), causes abnormal blood cell growth and is characterized by chronic inflammation. The Importance of Gut Health Your gut microbiota, the […]
MPN Symptom Burden: Discrepancy Between Patients & Doctors
Doctors Miss the Mark on MPN Symptoms, New Study Shows by David Wallace We’ve suspected it for years, but now there’s proof: doctors aren’t fully grasping how bad MPN symptoms really are for patients. I just read this eye-opening study from a German research group that tracked almost 4,000 MPN patients, and the disconnect between […]
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