The MPN Community needs a Celebrity Spokesperson to bring awareness of our “Rare Blood Disease”
by David Wallace
I wish the fact she had Polycythemia Vera was more prominent in the articles on her death. She would have been a first-class “celebrity spokesperson” for our cause, MPN Awareness.
Articles below provide more details, only a few “news stories” flooding the web even mention she had Polycythemia Vera, PV.
- Phyllis George, former Miss America and First Lady of Kentucky, dies of rare blood disease at age 70
Slightly off-topic, but….I find it somewhat ironic she is pictured here supporting a great cause/organization, Alzheimer’s Association. That hits close to home, as I lost my mother to Alzheimer’s in 2014.
As a patient advocacy leader, I do my best to spread awareness of MPNs and Polycythemia Vera.