Support the MPN Research Foundation

Dear MPN Patient,

Hello! Allow me to introduce myself – my name is Molly Guy, my dad Robert Rosen is the founder of the MPN Foundation, and I’ve been a board member for over two years.

In 1998, after experiencing numbness in his fingers and toes, and endless disorienting doctor’s visits, my Dad found himself at a loss. It was a terrifying time for my family. We knew something was terribly wrong with his health, but we had no idea what it was.

Soon after the diagnosis he quit his job to create the MPN Research Foundation in order to fund scientific research in the name of finding a cure. I am beyond grateful that my pops is healthier than ever  – and committed to helping others who are affected by the disease. I created this video in tribute to him and his tireless spirit.

In the spirit of the holiday season, I hope you will watch the video and then make a contribution.  As a new mother (my daughter is now 20 months old), I am aware of the fragility (and beauty!) of life more than ever. I want my Dad to live to be 124. And I want all of your family members who are affected by the disease to do the same.

The Guy family thanks you for taking the time to read this and your generosity.

Much love, and happy new beginning

Molly Guy

New mutation discovered for MPNs – New Orleans, LA December 10, 2013 – MPN Research Foundation grantee Robert Kralovics reported on the discovery of a new genetic mutation that accounts for most of the JAK2 and MPL negative cases of MPN. Reporting at the American Society of Hematology Annual Meeting, Kralovics pointed to a New England Journal of Medicine article which details the new discovery. This could have great impact on the JAK2 and MPL negative population of MPN patients. We will report more as information become available.

 

About David Wallace

Founder of PV Reporter, a resource for Myeloproliferative Neoplasm (MPN) patients and caregivers. After being diagnosed with Polycythemia Vera (PV) in 2009, I utilized social media to connect with "informed patients" and develop a better understanding of emerging treatment options. My philosophy on patient care is straight forward - "educating the patient is essential, so the patient can guide their physician to meet his or her needs." PV Reporter is a comprehensive resource hub giving visitors vital tools to become "empowered patients."

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