Become an Empowered Patient

E-Patients – A New Breed of Informed Heath Consumers

E-Patients are using the power of the internet to gather pertinent information related to their medical condition.  Online guidance is sought out by patients and care givers.  There are several MPN patient communities that offer us the opportunity to track the latest developments and new therapies.

The Digital Era has created a new Model of Medicine with Patients More Engaged in their Healthcare

e-patientCollectively, smart patients now have the resources to stay on top of our diseases (Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis) and offer suggestions to our doctors at the local level.  The typical hematologist needs to stay on top of dozens of different  forms of Leukemia (acute and chronic), each with their own sub-type and possible gene mutations.  As rare as MPNs are, your “local” doctor might see few very patients with your disease.  By using resources like PV Reporter to target specific information using MPN Search, you can be armed with the latest research to share with your doctor and work collaboratively on a treatment plan.

Online patient communities provide information, support and coping skills that are particularly beneficial to patients with rare diseases.


Partnering with Patients to Drive Shared Decisions for Better Healthcare

This video provided by Institute of Medicine explains it best and shows this is becoming a nation wide healthcare trend.


 

Key Elements in Becoming the Empowered Patient

 


Resources and Articles on Becoming the Empowered Patient


Check out more resources at MPN Cancer Connection!Click here
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